Be your own advocate

Has anyone ever gave you the advice to be your own advocate? Well I suggest you take the advice! In a world with little knowledge with rare dieases its your job to educate others. Having a rare diease like my self, i nor should you feel ashame or feel sorry for your self. Its not life sentennce its just a life style. A way of living just to be healthy and feel good. Why not advocate for you self and educate the world. Be proud and embrace being different 💕