Monday, July 1, 2019
Traveling with pku!
Traveling while having pku is kinda hard. It's all about planning each meal for the day. Making sure you stay within your phe goal range. I recently just got back from my trip from Gatlinburg. It wasn't just a regular vacataion. It was a trip that changed both my now husband and I. Because we had gotten married! Any ways packing for the trip was a challenge when it came to pku. I made sure I definitely had my forumla and my kuvan that lasted the three days we were gone! I also packed extra forumla just in case I needed it. Because when I ever I feel slightly sick I always turn to forumla to drink. Alot of the times it helps me feel better. As far as meals goes. I tried to figure out each day phe intake wise. Since I'm about eight months pregnant. I had a great amount of phe tolerance (800mg). Which wasn't to hard to plan meals. It's just making sure I had enough thru out the day was the hard part. During the trip I made sure to calculate everything I ate. I even brought my scale with me. As much as attention I got in public. I didn't care. I knew that it was better to use it. Then let my my self and the baby have too much phe. Some mornings I made sure I had fruit. To help save phe to eat out later. The only foods around us that I was able to eat were potatoes and salads. Which I stuck to only that. I discovered the best place for salads is subway! They let you build your own salad. And everything is fresh. It's a good size salad. I would seriously reccomend it! If you have lower phe tolerance while traveling I reccomend to bring your own low protein food and make sure you eat plently of salads if you go out!
But dont ever let pku stop you from traveling or living life. Remember it's a life style not a life sentence. I know sometimes it feels like its true. May the odds ever be in your favor if you do take vacation!
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