Phe goals!

Every one with pku that is on the low protein diet has a phe goal/ tolerance! What is a phe goal? Its an amount that a pku person can consume a day. That is safe for the body to break down. And it won't be so much phe to hurt the brain! A dietation determines how much phe your body can have a day! Recently my tolerance changed to 900mg based off of my last blood spot results. I have to admit it's the highest I ever had. But that's because I'm in my third trimester. And luckily the baby has no problem helping me break down my protein. The biggest question is will he have pku? In my gut I have a feeling he won't. Because my phe intake had went up dramatically! And the lowest I ever had was 200mg a day. To people with out pku don't really understand why it's a big deal. But for anyone with pku it is! The more phe you can have the more easier life can be! And the options of different foods become available! Alot of people ask me all the time is will you ever grow out of it the answer is no. Its for life! Its not even remotely possible to grow out of it. The only way to get rid of is a cure. Which there's not one. There are just treatments to help make life alittle easier. But it's not the end of the world it's just a lifestyle that I've always had!