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My name is Sarah and I have classical PKU. For those of you who don't know what PKU is. It's a genetic condation that was detected at birth. People with pku can not break down a certain type of amino acid called pheynlanine. Having pku means that you have to keep track of everything that you eat and the amount of protein you consume. Over the years a lot of people always looked at me like I was crazy or I just made it up. But the reason why not a lot of people know about it is cause it's a rare diease. There's about 19,000 people in the united states alone with pku. That's why it's so exciting to meet others that have pku. It makes you feel normal for once. And there's not so many questions all the time! And I don't always have to hear the famous line of I would die if I was you because you can't have meat or hardly anything! But you can't miss what you never had. And nine times out of ten I hear that or I'm sorry.
I'm not sorry. It's apart of who I am. It's a life style that I'm very comfortable with.
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