Thursday, June 27, 2019
Conquering maternal pku
From the time I was freshman in high school to the age of 23 I was off diet.
But on December 4th of last year is when we found I was pregnant. My levels were currently at that moment in time were an 18. Which scared the hell out of me. And not sure how I was going to manage this challenge. But from going to Emory metabolic camp for years. They taught me a lot about maternal pku. As soon as I got the news that it was positive I contacted my clinic. Within 5 minutes from the email that I sent. They called me. They already had a plan set in stone for me. In the begining they wanted me my phe intake to be 200mg. And drinking 8 scoops/ packets a day! And making sure I sent out blood spots twice a week. In the back of my mind. I knew that I was ganna struggle in cutting out foods that I was eating while off diet. But it was also a challenge to track my phe intake. Luckily they recommend how much phe website. And I fell in love it. It helped me so much. I basically lived off salads and low protein pasta at the time just to make sure I got my levels down. But within two weeks of finding out I droped them to 2.0! I was so proud of my self. For about 6 months of my pregnancy I was nauseous all the time. I didn't know until i was informed by my clinic that puking was not good for my levels. Which I struggled for the first two trimesters of my pregnancy! To the point I had to ask for nasusa medication. Which by the way I hated. It always made me feel like a zombie at work. Because it was pretty strong stuff. I was seeing two different obgyns and going to my pku clinic. I basically lived at the drs office. But it didn't bother me. Because the goal at the end of it all was a healthy baby! When I was about 15 weeks pregnant I found out I was having a boy thru my high risk Dr. My high risk Dr was in charge of doing my ultrasounds and examining the growth of the baby. My regular Dr was just in charge of the delivering and any other needs I have. I've been pretty blessed so far! With out all the support from family, my fiance, friends, and all four of my drs I won't have such a successful pregnancy. I'm truly blessed. Pku pregnancy isn't easy but it can be manageable if you have the strength and motivation to do so. It trains you to start becoming selfless and thinking like a mother. Pku maybe a pain in the ass at times but it makes me stronger in every way. 💙
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