Sunday, May 3, 2020

Week 4

It’s been 4 weeks that I have been on 20mg and so far it’s been good. I did have a clinic appointment last week as well as a blood test. The appointment went well and I finally found out my results. My phe level was the same as last month which was a 15! It was pretty discouraging to hear that. But between my pku clinic and Biomarin team they keep encouraging me that i will see successful phe levels soon. It just depends when my body will accept the medicine!
Hopefully that will be soon!

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