Week 6 on 20mg

This week I still haven’t had any side effects! But this is also the first week I’m able to go back to work after being laid off for two months. So things are a little different and life is getting a bit busier now.  So adjusting my schedule will be a little hard. I usually like taking my shot at night. But with my new schedule I realized that it’s not a good idea. I’m usually pretty tired after a long day at work. So far I missed my shot twice this week. Which means I need to try to do my shots I the morning or at work. I know this schedule temporary So in the mean time I just need to figure out how to adjust to it.

Week 5 on palynziq

It’s been five weeks since I’ve been on 20mg. So far the side effects I’ve had is a rash and some itchiness. And a little bit fatigue. But I’m completely blessed to say that most of the side effects are gone. Now it’s just my body being okay with the shot. Hopefully I see good results soon.

Week 4

It’s been 4 weeks that I have been on 20mg and so far it’s been good. I did have a clinic appointment last week as well as a blood test. The appointment went well and I finally found out my results. My phe level was the same as last month which was a 15! It was pretty discouraging to hear that. But between my pku clinic and Biomarin team they keep encouraging me that i will see successful phe levels soon. It just depends when my body will accept the medicine!

Hopefully that will be soon!