The count day to clinic day!!

Last week I got the best news ive been waiting for. Palyinzq was finally approved up to a year thru my health insurance. Which im completely shocked and excited for it. The question is what is the next step? Well I had to make an appointment for my first injection which is January 27th. I'm super nervous. Ive been praying that it will work and I wont have an allergic reaction. They also advise me to get all my premeds which is all over the counter that helps side effects. Although im not sure what they are yet. Im hoping to hear by monday. However I did tell my both of my bosses a bit about palyinzq and the epi pen. Which its kinda hard to explain when someone doesnt know I have pku but i feel like its very very necessary to let them know because i have to carry an epi pen. 

Anyways I will keep y'all updated on this new journey! Until next time ❤

The waiting game!

Its been about 5 weeks since i had a talk with my clinic about starting palyinzq. Within the same visit I also did my safety video. I know your probably wondering for what? Right? Well let me explain. Palyinzq requires you to carry a epipen on you at all times. It teaches to look for the signs of anaphylactic shock. The more knowledge you have for the signs the more likely you'll be okay if you actucally get to that point! I know it sounds scary huh? But my philosophy is... Life is a gamble and sometimes you need to take risks in order to win right? So why not? Im more than ready start in the right direction again. Now that i know what its like to have good levels and to feel good. Its all I want for my self anf the sake of being a wife mom and teacher. It would make things so much easier a clear head is better then always being foggy. As I sit here and wait for insurance to okay everything ive experinced so much effects from having high levels I realize that no one will truly understand what it feels like unless they have it. So like most things insurance takes there sweet time to approve anything. Mind you ive been off kuvan for a month. Which barely worked but at least it was something. Its just been fustrading to have to wait and constantly feeling awful. But I'm trying to stay positive that this is the week I will get to start it 🙏